Andy's Lissencephaly
Awareness Website
We are not a company,
We are a small family asking for help!
Here's A Little About Our Family
I would like to tell you
a little bit about Andrew, our family and
why it is so important for us
that he gets help.
Andy is the happiest 2 year
old child we have ever had the pleasure
of meeting.
He has a condition called Lissencephaly
or Smooth Brain Syndrome that
completely disables him.
He cannot walk, talk, hug, run,
crawl, feed himself, or play with his 2
older brothers and his older sister.
He cannot tell his father and
myself that he loves us or tell us
when he feels sick.
He doesn't reach for us because
the part of his brain that controls that
movement isn't there.
And yet he's literally the best
thing that has happened to our family.
He smiles and laughs when I
want to break and cry.
he lifts my heart with a single smile.
He touches everyone's heart that comes
into contact with him.
He is our angel.
If you're wondering,
"Why would I give money to
a complete stranger? I know nothing about them."
Let me tell you a little
bit about our families history and current situation and why I'm asking complete
strangers for help.
I'll go back a few years.
We lived in San Leon, a
small town only 30 minutes from Galveston, TX when Hurricane Ike struck and devastated
the Gulf Coast.
Our life was turned upside down.
We lost everything we had been working for.
We've moved from place to place
and over the years we have literally barely scraped by.
A few years ago it seemed
that there was a light at the end
of an extremely dark tunnel
when my husband landed a good job in
San Antonio while I was pregnant
with Andrew.
Then work stopped.
The company lost all work and
we lost our home, again.
I've lost hope so many times
it's not funny.
Then we had our Andrew
December 16, 2011 and we were terrified.
How were we going to take
care of 4 children?
We've made it work, barely, but we've done it.
We found out in June of
2012 that our beautiful Andy was
afflicted with a condition that could and most likely will end his life before
he's had a chance to experience life.
That news tore a hole in
my heart that I cannot fix.
Now we've found a place where
we can finally settle down but his Neurologist
and ALL his doctors appointments are
over an hour away from where we live
and due to our circumstances right
now we've had to push extremely important appointments back because we do not have
the gas to get to them.
Without these appointments he won't get
the life extending care that he needs.
He needs a wheelchair that will
support his body the way it needs to
be and other medical equipment to
make his life easier but we can't get
to the fitting appointments.
He has EEGs and eye appointments.
This child is a blessing to everyone that
knows him and he deserves the
best.